S-280National Framework on Sickle Cell Disease Act

What it does

• Requires the Minister of Health to develop a national framework on sickle cell disease.
• Includes measures for training, education, and diagnostic and treatment tools for health care professionals.
• Creates a national research network, improves data collection, and establishes a national registry on sickle cell disease.
• Sets evidence-based national standards for diagnosis and treatment, and measures for equitable access to newborn screening, diagnosis and results.
• Includes measures to support public awareness campaigns and an analysis of a tax credit for people with sickle cell disease and their caregivers.
• Requires the minister to consult other ministers, provincial and territorial governments, and stakeholders, then table the framework in Parliament within one year and report later on what was implemented.