S-201National Framework on Sickle Cell Disease Act
An Act respecting a national framework on sickle cell disease
Senate public bill, introduced in the Senate on May 28, 2025
- Status
- In committee in the House of Commons since June 16, 2026
- Sponsor
- Marie-Françoise MégieSenator
- Senator
What it does
Requires the Minister of Health to develop a national framework on sickle cell disease and report it to Parliament.
What it does
- Requires the Minister of Health to develop a national framework on sickle cell disease.
- Calls for measures on health worker training, education, diagnostic and treatment tools, and evidence-based national standards for diagnosis and treatment.
- Creates a national research network, with better data collection and a national registry on sickle cell disease.
- Includes measures for universal newborn screening, public awareness, and wider blood donation to support safe transfusions.
- Requires analysis of a tax credit, disability benefit eligibility, and the inclusion of needed treatments in public drug insurance plans.
- Requires the minister to consult provincial and territorial governments, health and research groups, and other relevant people before finalising the framework.
Who it affects
- People with sickle cell disease
- Families and caregivers
- Health care professionals
- Researchers
- Blood donors
- Provincial and territorial governments
- Federal Minister of Health
Background
Sickle cell disease is also called sickle cell anemia or drepanocytosis.
Where it is
Senate
First reading
Completed.
Second reading
Completed.
Committee
Completed.
Third reading
Completed.
House of Commons
First reading
Completed.
Second reading
Completed.
Committee
Current stage. Now here
Report stage
Not reached.
Third reading
Not reached.
Royal assent
Royal assent
Not reached.
Introduced by a senator. If the Senate passes it, it goes to the House of Commons, where an MP must agree to sponsor it. How a bill becomes law
How the House voted
No recorded votes yet
What MPs said
Each party’s first speech on this bill in the House, from Hansard. Excerpts are the speaker’s opening sentences, unedited.
LiberalMichael Coteau· April 17, 2026
“If this bill is passed, it will make a significant, positive difference in the lives of thousands of Canadians across this country. For far too long, sickle cell disease has had a negative impact on too many Canadians.”
Read the full speech on openparliament.caConservativeCarol Anstey· April 17, 2026
“It is always an honour to rise in the House, and specifically today to speak to Bill S-201, an act respecting a national framework on sickle cell disease. To begin, I want to acknowledge the important intent behind the legislation.”
Read the full speech on openparliament.caBlocMario Simard· April 17, 2026
“I am pleased to rise to speak to Bill S-201, an act respecting a national framework on sickle cell disease. This legislation establishes a national framework to support Canadians with sickle cell disease—also known as sickle cell anemia or drepanocytosis—their families and their caregivers.”
Read the full speech on openparliament.ca
Read the source
LEGISinfo status: At consideration in committee in the House of Commons. Bill data from LEGISinfo, votes from openparliament.ca and the House of Commons. Last updated October 13, 2026.